CareMirror：将照护者福祉纳入痴呆照护生态系统的系统
CareMirror: Bringing Caregiver Wellbeing into the Dementia Care Ecosystem
想了解如何用系统支持痴呆照护中的照护者福祉，可以看看这篇论文，它详细描述了 CareMirror 的设计和照护者的反馈。
我们构建了 CareMirror 照护者福祉生态系统，包含面向照护者和临床医生的界面，用于长期反思、个性化支持和照护者控制的临床信息分享。通过访谈14名照护者，发现他们重视照护者福祉的关注、长期意识、上下文敏感支持和临床可见性，但也担心重复反思的负担、自动临床分享可能抑制坦率，并希望控制信息进入临床照护。他们期望AI支持反思和沟通，但不希望取代照护者声音或临床医生判断。
CareMirror: Bringing Caregiver Wellbeing into the Dementia Care Ecosystem
Family caregivers of people living with dementia shoulder emotional and practical responsibilities, yet their own wellbeing often remains peripheral to dementia care. We built CareMirror, an envisioned caregiver wellbeing ecosystem with interconnected caregiver- and clinician-facing interfaces for longitudinal reflection, personalized support, and caregiver-controlled sharing with clinical care. We conducted semi-structured interviews with 14 caregivers, using CareMirror as a design probe to examine how they perceived this ecosystem and what expectations, concerns, and boundaries emerged around clinical connection. Caregivers valued attention to their wellbeing, longitudinal awareness, context-sensitive support, and clinical visibility when it could lead to meaningful follow-up. However, repeated reflection could become burdensome or emotionally difficult, automatic clinical sharing could inhibit candid disclosure, and participants wanted control over what information entered clinical care. They also expected AI to support reflection and communication without replacing caregiver voice or clinician judgment. We contribute design considerations for proactive, clinically connected caregiver wellbeing support.